I was diagnosed with Myasthenia Gravis two years ago. Have been on Prednisone since diagnosis. As much as I hate all of the side effects, I am alive. I am able to do more with and for my girls than if I were not on prednisone. I may not be able to do it all or everything that I want to, for and with them, but I am here. They don’t go a day without me giving them my love. I seriously cannot go any more than 8 hours without attacking them with love. Weather it be kisses, tickles or snuggles. That’s it- that’s my job. To let them know how amazing they are and can be and to love them and make sure they know it.
But that is not the point of this post. Last week I tried to get off of prednisone and it did not go well at all. We are without insurance right now so I can’t see a Dr but I’m 100% positive I had an allergic reaction to Cellcept. Fever, chills, the runs, burning itchy rash on my whole head, neck and chest, pretty extreme mood swings, and a Terrible pain in my bones. Tomorrow I will be picking up some prednisone from the pharmacy. I was so happy to get off of those meds and now I am so happy to be getting them back. I remembered I had an emergency stash of meds in my car and took some today. Needless to say- since I was out of commission all of last week- my house was cleaned today! It felt so good to vacuum haha
So, in summary, I love these meds because I love my girls and don’t wanna miss a thing in their lives, but I hate these meds because, I’m pictured above. And it’s hard to accept when all you have in your ear is that you’re fat, ugly and lazy. I have to constantly remind myself that I have a disease and meds that make me this way, just to stay sane. Hopefully once I have the thymectomy I’ll go into remission and things all around will be better.